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Experience of parents of children with autism spectrum disorder in treatment and co-operation with different professional services

Nives Medved (2019) Experience of parents of children with autism spectrum disorder in treatment and co-operation with different professional services. MSc thesis.

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    Abstract

    This thesis investigates the experience that parents whose children have autism spectrum disorder have had with the specialists from different institutions and organizations, with whom they have had interactions during child’s guidance and treatment. In the theoretical part, I defined some key concepts connected with the autism spectrum disorder. I presented the process of diagnosis, treatment and guidance of the children with the disorder, and the specialists, with whom a child and parents meet during this process. I focused on parents’ rights and responsibilities and exposed how the official documents, covering the guidance of the children with special needs, define the integration and collaboration with parents as partners. From the perspective of comprehensive approach to the treatment, I disclosed a few types of help and support that the specialists can realise in the collaboration with the parents. I originated from the core concepts of social pedagogical realization that are the ethic of participation and strengths perspective. Moreover, I introduced an overview of some researches, covering the topic, that had already been done in international and Slovene environment. In the empirical part, based on a selected sample, I investigated the experience of parents whose children have autism spectrum disorder, by collaborating with different specialists. I used qualitative research method in my investigation. The conclusions were that in most cases, the parents are excluded from the guidance and treatment processes and overlooked as the experts by experience. Too often, they do not recognize parents’ needs, depriving them of information, support and help. Generally, the parents manifested unpleasant experiences and dissatisfaction with social workers. The research put in focus two major needs: making both professionals and lay public aware about the subject and assigning qualified attendants to all children with autism spectrum disorder.

    Item Type: Thesis (MSc thesis)
    Keywords: autism spectrum disorder, child with autism disorder, parents, collaboration with specialists, participatory practices
    Number of Pages: 108
    Language of Content: Slovenian
    Mentor / Comentors:
    Mentor / ComentorsIDFunction
    doc. dr. Jana Rapuš PavelMentor
    Link to COBISS: https://plus.si.cobiss.net/opac7/bib/peflj/12351817
    Institution: University of Ljubljana
    Department: Faculty of Education
    Item ID: 5630
    Date Deposited: 25 Mar 2019 06:53
    Last Modified: 25 Mar 2019 06:53
    URI: http://pefprints.pef.uni-lj.si/id/eprint/5630

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